Wednesday, September 15, 2010

Appt. Rescheduled

We were all set to meet with the radiation oncologist today and get some sort of plan going. I've poked around a little on-line and I'm not really sure what kind of radiation E. will be getting. I think the assumption is that it will be "whole brain radiation." One possible option I've found though is Cyberknife. It is my understanding that Cyberknife treatment could be done in fewer sessions and with fewer side effects. That sounds pretty appealing. At the time that E.'s brain tumors were discovered, we were told that Cyberknife wasn't an option because the tumors were too big. Now that the tumors have been removed though, we're not sure if Cyberknife is an option for the remaining cancer cells. Anyways, these were all things we were hoping to discuss with the radiation oncologist today. We figured we'd collect information, get questions answered and get a plan in place.

But then we got a phone call informing us of a "scheduling error" and that we needed to reschedule the appointment. The receptionist suggested tomorrow morning as there were "all sorts of appointments available." Perfect, I said. E. has physical therapy from 9:30 to 10:30 in the same building, so we could come in at 10:30. Except the 10:30 appointment was booked. And so was the 11:00 slot. And the 11:30. She offered us an appointment at 9:45 ... I explained that probably wouldn't work out so well because of the previously mentioned physical therapy appointment. She then stated that "the appointment should be really quick, so you could come here first and then go to physical therapy." We're discussing brain cancer and that appointment is supposed to be REALLY QUICK?!?

To make a long story short (well shorter than it could be), we finally settled on an 8:30 appointment tomorrow morning. It makes for a crazy morning here ... getting the boys off to school, having Peanut up, fed and ready, and getting us across town by 8:30, but we'll make it work. We're anxious to get this show on the road.

4 comments:

  1. keeping you E and the family in my prayers.

    xo,
    cris

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  2. I've had CyberKnife twice. Once to the nasopharynx. And just two weeks ago, for a neck node.

    I asked the techs at the CyberKnife location. They said they treat brain and lung tumors most often.

    Mark

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  3. Thanks for keeping us updated. I hope E has recovered from his flu-like symptoms.

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  4. Hoping for CyberKnife over the alternative, but will do whatever we need too.

    Thanks for letting us know you're there folks.

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