Wednesday, August 24, 2011

Reflections

I've spent most of the week reflecting. Thinking back. Remembering. Sometimes it is hard to believe how much time has passed. Yet in other moments, it seems like it was just yesterday.

Last night at dinner, I read aloud the blog posts from a year ago. I was immediately taken back. When E. asked me to describe in one word how that time period was, I replied, "scary."

Even thinking about it now, I can get that feeling in my stomach. I can remember that first moment when I truly realized that something wasn't right on that Friday night. How suddenly my hindsight became clearer and things we had been excusing away for the previous couple of weeks weren't right either. That eerie and quiet trip to the emergency room and then the long wait for tests, scans, doctors and specialists. Finally, the news that we dreaded but that we both secretly suspected ... brain tumors. The cancer was back and it was in his brain.

I remember the following days of trying to figure out what exactly this meant and where we went from here. Friends and family rallied around us and picked up the many pieces so I could be at the hospital. I don't know what we would have done without them. Decisions had to be made and a plan had to be decided on. I felt like the whole time I was holding my breath. Once we had a plan for surgery I felt like I could exhale a little bit, but then came surgery. Brain surgery. It all sounded so ominous. On the outside, E. and I both held it together well. We knew we had to be strong. There were people counting on us. We were counting on each other. There were private moments though, moments between the two of us, when those walls came crumbling down. We were scared.

Yet, here we are a year later. E.'s got scars on his head as reminders of what he's been through. He's battled with some episodes of brain swelling (we're assuming) and he still occasionally gets some intense headaches. He continues to take the anti-seizure medication as supposedly the seizures are still present, although we've been fortunate to never witness anything we've imagined as as stereotypical seizure. His short-term memory can still be a bit fuzzy (particularly if he's overly tired or not feeling well), but considering the long list of potential side effects from not only the brain surgery but also the cyber-knife radiation treatments, I'd say he's fared extremely well.

He takes pleasure in his girls and spending time with them. He enjoys watching the boys' sporting events. He delights in Peanut's daily antics. He's hitting the gym with some regularity ... a little cardio, some weights and his beloved sauna. He cooks up a storm and keeps us all fat and happy. He watches his ESPN, his CNN and his history channel (that is when Peanut doesn't steal the remote before him and then he's stuck watching PBS or the dreaded Sponge Bob). He's looking forward to football season, both for the Minnesota Vikings and the UNR Wolfpack. And, he also wants to get back to work. Specifically, he wants to start working on his clinical hours for his LCSW (For those of you familiar with LCSW requirements, you know how this works. For those of you not familiar, let me just say, the clinical hour requirement is astronomical.). He worked so hard on his MSW and he's got so much experience and talent, it would be a shame not to use all of it. He'd love to work with Veterans, but is open to other areas as well. Anyways, if you hear of somewhere who could use someone like him, give him a ring.

I'm so very grateful to be where we are today. I love that man, scars and all.

Saturday, August 20, 2011

Our Family


The wonderfully talented Alexa Appell of Little Things Photography
took these amazing family photos for us.
Have you ever tried to get 12 people looking at the camera,
including a 2 year old?




"Once upon a time ..."




Dad and Mom showin' a little Peanut love.

Love, Love, Love.

All around.

Saturday, August 6, 2011

Pool Time

Peanut loves to play in the water,
whether it be at the beach, the pool or just the bath.
He frequently grabs his swimsuit
and asks to go to the beach or the pool.
In rare event that we ask first,
"Do you want to go swimming?"
The answer is always the same ...
"Yes, pweeeeze."
Following by a big smile and lots of jumping up and down.
He is so darn cute.

Thursday, August 4, 2011

Good Mix

Each year since 1990, U.S. News and World Reports comes out with special report, ranking hospitals across the nation in a variety of specialities. It was one of the reasons, one of the main reasons, we found ourselves headed to Texas when we decided to seek out further treatment after E.’s esophageal cancer diagnosis. At the time, M.D. Anderson Cancer Center was ranked as the #1 hospital in cancer care in the nation. It was ranked #1 in 2011. It was ranked #1 in 2010. And in 2009. And in 2008. And 2007. Matter of fact, M.D. Anderson has consistently been named one of the top two cancer hospitals for all 22 years of the survey. Pretty impressive, eh?


Recently I came across another publication from U.S. News in partnership with Castle Connolly Medical Ltd. Rather than rank the best hospitals, this report ranked the best doctors, again in a variety of specialities. Curious, I searched out the names of E.’s doctors, wondering if any of them would make the prestigious list. Doctors listed in the “U.S. News Top Doctors” are estimated to be in the top 10% nationally. Remarkably, some doctors were given even more recognition with a special icon by their name, denoting that they were estimated to be among the top 1% in the nation in their speciality. The top 1%. Holy smokes.


Oh yeah, back to my search. First, I searched E.’s surgeon. Mind you, E. never got to the point of having surgery, but we really like his surgeon and he’s stayed on E.’s case even though surgery has been off the table for a long, long time. Sure enough, he’s on the list. Top 10%. Then I searched E.’s neuro-oncologist. She hasn’t been on E.’s case since the beginning, only joining after the brain tumors made their appearance. Again, her name appeared. Top 10%. Finally, I searched E.’s medical oncologist. Whoa. There he was. And with an icon by his name. A special icon. Top 1%. Top 1% in the nation.


Good hospital. Good doctors. Good guy.


Good mix, if I do say so myself.